Research Application/Framework

OpenHIE is a Global Mission-Driven Community of Practice
Dedicated to improve the health of the underserved through open and collaborative, development and support of country driven, large scale health information sharing architectures.
Enabling large scale health information interoperability
Offering freely available standards-based approaches and reference technologies
Supporting each other’s needs through peer technical assistance communities

i2b2 (Informatics for Integrating Biology and the Bedside) is an NIH-funded National Center for Biomedical Computing based at Partners HealthCare System. The i2b2 Center is developing a scalable informatics framework that will enable clinical researchers to use existing clinical data for discovery research and, when combined with IRB-approved genomic data, facilitate the design of targeted therapies for individual patients with diseases having genetic origins. This platform currently enjoys wide international adoption by the CTSA network, academic health centers, and industry.

MOLGENIS is a modular web application for scientific data. MOLGENIS was born from molecular genetics research (and was called 'molecular genetics information system') but has grown, thanks too many sponsors and contributors, to be used in many scientifc areas such as biobanking, rare disease research, patient registries and even energy research. MOLGENIS provides researchers with user friendly and scalable software infrastructures to capture, exchange, and exploit the large amounts of data that is being produced by scientific organisations all around the world.

OpenSpecimen (formerly known as caTissue Plus) is a Free & Open Source biobank/biospecimen management software. At the heart of OpenSpecimen is that “biospecimens without high quality data is of no value”.

OpenSpecimen is used across the globe in some of the most respected biobanks of various sizes and diseases. OpenSpecimen streamlines management of biospecimens across collection, consent, QC, request and distribution. Finally, OpenSpecimen is highly configurable and customizable. E.g., adding a custom field or form can be done in minutes by a non-IT person.